Six months ago, myasthenia gravis stole my voice. It’s left me near mute, with only a crackling, high-pitched tone to replace the fluidity of my former speech.
In truth, my voice has been failing for the past ten years, but only recently has it seriously impacted my life, making work and social situations awkward and uncomfortable.
Unable to communicate effectively in a verbal manner, I’ve noticed people ignoring my opinions and comments, as if the loss of voice corresponded to a loss of brainpower.
To Speak. To Breathe. is the pictorial representation of my most noticeable symptom of myasthenia gravis, the frustration that accompanies the disease and the sense of absolute release and relief I will feel when I regain my speaking ability.
Although I’ve never been a big talker, I’ve noticed an interesting phenomenon: with my speech impaired, I’ve suddenly realized I have something to say.